Little evidence-based research has been conducted and very little data is available or has been conducted in the South African context of dementia.

DementiaSA together with Dr Celeste de Jager of the University of Cape Town and The Donald Woods Foundation in the Eastern Cape embarked on an eighteen month prevalence study

It is essential that people living with dementia have a right to live their lives with choice and dignity.   More robust research is needed in South Africa to inform policy and ensure that Human rights, epidemiology, demographics and gender issues will inform the research base which will be supervised by an academic and appropriate committee.